According to an article in the GenomeWeb News, there has been preparation in the efforts of finalizing a set of recommendations towards genomic privacy. The Bioethics Commission plans to establish the complete genome sequencing report sometime this fall. In a meeting mid-July, Commission Chair and President of the University of Pennsylvania Amy Gutmann remarked, “the commission’s recommendations clump into two big categories: one is consent to whole genome sequencing and to the possible findings and how the will be treated, and the other is oversight.”
Although this has been moving to a completed process, there have been concerns about genomic data privacy. The GenomeWeb article states that researchers pooling both genomic and medical patient information in vast databases could produce the foundation of a biomedical uprising.
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